Published May 7, 2019

#228 Get Your Game Face On

Scott Benner and Alina delve into the emotional and practical aspects of parenting a child with type 1 diabetes, highlighting strategies to combat stigma and the transformative role of new technologies in improving disease management and quality of life.
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Episode Highlights

  • School Struggles

    and discuss the challenges faced by families dealing with type 1 diabetes, particularly in educational settings. Alina shares her experience of her daughter, Lila, being rejected by multiple preschools due to the stigma and perceived burden of managing diabetes. She recalls the relief of finally finding a supportive preschool, which was pivotal in overcoming her depression and building a community 1.

    I felt like all the adults were afraid. And I literally, for one, preschool, did all the training, did outlines, did all the charts, and the day before it was supposed to start, they said, no, you know, we're not equipped to handle her.

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    Scott empathizes with the struggle, acknowledging the emotional toll it takes on parents trying to ensure a safe environment for their children 2.

       

    Perception Challenges

    Public perception of diabetes often leads to stigma, which can significantly impact those living with the condition. recounts a story of a teenager who avoids administering insulin at school due to embarrassment, highlighting the pervasive nature of stigma 3. Alina emphasizes the importance of normalizing diabetes management in public to prevent her daughter from developing a complex about her condition.

    Nothing can be as important as your health. You can't let someone's opinion or a sideways glance get in the way of your health.

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    By attending diabetes camps, Lila gains confidence and a sense of belonging, seeing others manage their diabetes openly 3.

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